Denial

Well, I seem to be in denial.  I was thinking about reaching out to my daughters NF doctor to ask for a note for school.  She is going to be re-evaluated for her IEP (Individualized Education Program) in the coming weeks, she has been doing so well in school this year (most recent report card straight A's!!) that the special education teachers are going to recommend taking away some of her services.  She has been receiving help since the 2nd grade...long before the NF1 diagnosis.  Apparently learning disabilities are linked to NF.  She is behind grade level in reading, which naturally affects other subjects. 

Even before the NF1 diagnosis, I wanted the teachers to keep her at the same level of help for the 9th grade because the transition from middle school to high school could be stressful without the added changes.  I simply didn't want them to pull the carpet out from under her.  Now with this new knowledge of learning disabilities associated with NF, I think a note from the doctor would be nice to have.  But this raises a couple issues for me...

1)  Do I tell the school of her diagnosis?

2)  Requesting the note from the doctor makes this far more real...not having any troubling NF1 symptoms, other than the spots, is helping me to stay in denial.  Geez, I would love to be able to stay in this denial my whole life.  That would mean NF1 would never progress in her!!

I think the rational me is going to win out here though, but only for the motive of getting them [the school] to do what I want.  I'm looking at this note as my ammunition to keep her at the current level of help.  Kind of like I'm taking advantage of the NF1 diagnosis.  I guess that's not a bad thing, have you ever seen the slogan, "I have NF, NF doesn't have me."?