Tuesday, May 8, 2012

I did it!!


I sent the email to her doctor to request info regarding the connection between NF1 and learning disabilities.  It took me a while to write it.  You are probably thinking I am being irrational.  When I write an email, such as this, I would compose it like a letter, with an opening sentence/paragraph, before stating my request. 

How would I open this email:

Hi Dr. X:  Thank you for meeting with us on 20 April...

I can't thank him for that...thank him for this diagnosis, it just seems odd.  I know he didn't do anything to make our daughter have this, no one did.  Just a random fluke when her genetic code was being written.  But still.

So I just cut to the chase and asked him for the letter, of course I was pleasant and thankful. 

I am going to take this opportunity though to introduce NF to the school by taking a fact sheet.  From what I've read thus far on NF, it is the most diagnosed rare disease and is even more common than cystic fibrosis, Duchenne muscular dystrophy, and Huntington's disease combined. 

No comments:

Post a Comment